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Home / Stories - Page 2

Stories

Browse by type: Type 1, infantile Type 2a, late infantile Type 2b, juvenile Type 3, adult

  • Stories

    Happy 18th Birthday, Sweet Iris

    February 20, 2026August 19, 2026

    Happy 18th Birthday, Sweet Iris An update on Sweet Iris as she heads into adulthood,…

    Read More Happy 18th Birthday, Sweet IrisContinue

  • Stories

    Daxton’s Story

    February 20, 2026August 19, 2026

    Daxton’s Story, By His Mother A GM1 Infantile (Type 1) Story(Published Feb. 20, 2026) “GM1…

    Read More Daxton’s StoryContinue

  • Stories

    Nate’s Story

    December 26, 2025August 19, 2026

    Nate’s Story, By His Mother A GM1 Late-infantile, Type 2A Story(Dec. 26, 2025) “I didn’t…

    Read More Nate’s StoryContinue

  • Stories

    Kinley and Kennedy’s Story

    November 12, 2025August 21, 2026

    Kinley and Kennedy’s story, by their father “The girls recently hit their 5-year post Gene…

    Read More Kinley and Kennedy’s StoryContinue

  • Stories

    Eva & Franco’s Story

    October 20, 2025August 21, 2026

    Eva and Franco’s story, by their mother “We keep fighting for them and enjoying our…

    Read More Eva & Franco’s StoryContinue

  • Stories

    Nella’s Story

    September 19, 2025August 21, 2026

    Nella’s story, by her father “Nella is living with GM1. She’s not defined by it.”…

    Read More Nella’s StoryContinue

  • Stories

    Aidan’s Story

    September 17, 2025August 19, 2026

    Aidan’s story, by his grandmother “Don’t give up hope, but cherish each moment.“ How did…

    Read More Aidan’s StoryContinue

  • Stories

    Tiffany’s Story

    August 28, 2025August 21, 2026

    Tiffany’s story by her mother, Ruth “Tiffany has made me a better person. In spite…

    Read More Tiffany’s StoryContinue

  • Stories

    Solomija’s Story

    July 21, 2025August 19, 2026

    Solomija’s story, by her friend “Soli was beautiful, and she was beautiful in her soul.”…

    Read More Solomija’s StoryContinue

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  • Connect With Us
    • GM1 Families: Start Here
      • Resources For GM1 Families
      • Get in Touch
    • Reach Out
      • Contact Us
      • Share Your Story
      • Share a Quote
    • Resources
      • Subscribe to the Newsletter
      • Newsletter Archives
      • Blog
      • Caregiver Support Group
      • Friends Facebook Group
    • Events
      • GM1 Community Conference
      • GM1 Awareness Day
      • Rare Disease Day
      • See Our Events Calendar
    • Community
      • Community Stories
      • Family Videos
      • In Memoriam
  • Understanding GM1
    • What is GM1?
      • Life Expectancy
      • Causes & Incidence Rates
      • Download a One-Page Overview
      • Quick Facts
    • Advancements and Research
      • Latest Research
    • Subtypes of GM1
      • GM1 Type 1 – Infantile
      • GM1 Type 2
        • GM1 Type 2A – Late-infantile
        • GM1 Type 2B – Juvenile
      • GM1 Type 3 – Adult
    • Getting a Diagnosis
      • GM1 Diagnostic Testing Guide
      • Anti-GM1 Antibodies vs. GM1 Gangliosidosis
      • Newborn Screening for GM1
  • Research
    • Participate in Research
      • Join the GM1 Matrix (Patient Portal)
      • GM1 Biobank
    • Learn About GM1 Research
      • Enzyme Replacement Therapy
      • Research News
      • Cure GM1 Publications
      • GLB1 Variant Catalog (Gene Mutation Database)
    • Guides
      • GM1 Clinical Trials Guide
      • Miglustat for Families
    • For Researchers
      • Grants Overhead Policy
    • Patient Voice at the FDA
      • Patient-Focused Drug Development (PFDD) Meeting
      • Voice of the Patient Report
  • Ways to Give
    • Give
      • Donate Now
    • Fundraise for Cure GM1
      • Our Fundraising Manual
      • Do It For GM1
      • Fundraising Ideas
    • Fundraising Platforms
    • Shop
      • Shop and Support Our Cause
      • RaiseRight
      • Walmart Spark Good
    • Advocate
      • Proclaim GM1 Day
      • Buy and Wear Merch
  • About Us
    • Our Mission
    • Our Team
    • Our Advisors
    • Our Impact
    • Print A Handout
    • Financial Transparency