James’ Story
From James’ Mother: James was diagnosed with GM1 Gangliosidosis Type 2 Juvenile on November 7,…
Eve’s Story
From Eve’s Mother We live in Ukraine in the Odessa region. Eve was born…
Pia’s Story
From Pia’s Mother: Hello, my name is Stefany Sanchez. I am 23 years old. My…
Fatima and Sultan
From Sultan and Fatima’s mother: I am Sultan Ali and Fatima Shoaib Ali’s mother. …
Eva’s Story
Eva Maria 15.01.16-31.05.19
Vitto’s Story
Vitto’s Story from his family He was born on May 22, 2018 at 4AM in…
Leonor’s Story
Hello I am Sao Piteira and we are from Portugal. I am the Leonor’s mother…
Brayden’s Story
From Brayden’s Mom: Brayden was born on November 16, 2017 First Symptoms On Tuesday Feb…
Joey and Oliver’s Story
Joey, diagnosed with Juvenile GM1 on April 21, 2017 Oliver, asymptomatic, but diagnosed with Juvenile…
Hampus, Julia, and Isabella’s Story
From Hampus, Julia and Isabella’s Dad This is Hampus, Julia and Isabella. Hampus was born…