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Home / Stories - Page 9

Stories

Browse by type: Type 1, infantile Type 2a, late infantile Type 2b, juvenile Type 3, adult

  • Stories

    Saubhav’s Story

    January 14, 2019August 19, 2026

    From Saubhav’s Father My child’s name is Saubhav Singh.  He was diagnosed at age two…

    Read More Saubhav’s StoryContinue

  • Stories

    Candela’s Story

    January 14, 2019August 19, 2026

    From Candela’s Grandmother My name is Silvia Fernández. I am a grandmother of three beautiful…

    Read More Candela’s StoryContinue

  • Stories

    Tiffany’s Story

    January 14, 2019August 19, 2026

    From Tiffany’s Mother Tiffany is my beautiful daughter, who was diagnosed when she was 10….

    Read More Tiffany’s StoryContinue

  • Stories

    Niamh’s Story

    January 14, 2019August 19, 2026

    From Niamh’s Mother My 10 year old daughter Niamh started having seizures at age 2….

    Read More Niamh’s StoryContinue

  • Stories

    Allison’s Story

    January 14, 2019August 19, 2026

    From Allison’s Mother Our sweet Allison Layne was born May 22, 1985 in Tyler, TX….

    Read More Allison’s StoryContinue

  • Stories

    Aimee’s Story

    January 14, 2019August 19, 2026

    From Aimee’s Mother My little girl was 9 months old when she was diagnosed in…

    Read More Aimee’s StoryContinue

  • Stories

    Keeton’s Story

    January 14, 2019August 19, 2026

    From Keeton’s Father Keeton Elder, Keeton had a normal birth and enjoyed playing baseball and…

    Read More Keeton’s StoryContinue

  • Stories

    Ava’s Story

    January 14, 2019August 19, 2026

    From Ava’s Mother (written prior to Ava passing away) Ava was 3 on December 31,…

    Read More Ava’s StoryContinue

  • Stories

    Taylor, Kase, and Kolt’s Story

    January 14, 2019August 19, 2026

    From Taylor, Kase, and Kolt’s Mother Three of my five children were and are affected…

    Read More Taylor, Kase, and Kolt’s StoryContinue

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  • Connect With Us
    • GM1 Families: Start Here
      • Resources For GM1 Families
      • Get in Touch
    • Reach Out
      • Contact Us
      • Share Your Story
      • Share a Quote
    • Resources
      • Subscribe to the Newsletter
      • Newsletter Archives
      • Blog
      • Caregiver Support Group
      • Friends Facebook Group
    • Events
      • GM1 Community Conference
      • GM1 Awareness Day
      • Rare Disease Day
      • See Our Events Calendar
    • Community
      • Community Stories
      • Family Videos
      • In Memoriam
  • Understanding GM1
    • What is GM1?
      • Life Expectancy
      • Causes & Incidence Rates
      • Download a One-Page Overview
      • Quick Facts
    • Advancements and Research
      • Latest Research
    • Subtypes of GM1
      • GM1 Type 1 – Infantile
      • GM1 Type 2
        • GM1 Type 2A – Late-infantile
        • GM1 Type 2B – Juvenile
      • GM1 Type 3 – Adult
    • Getting a Diagnosis
      • GM1 Diagnostic Testing Guide
      • Anti-GM1 Antibodies vs. GM1 Gangliosidosis
      • Newborn Screening for GM1
  • Research
    • Participate in Research
      • Join the GM1 Matrix (Patient Portal)
      • GM1 Biobank
    • Learn About GM1 Research
      • Enzyme Replacement Therapy
      • Research News
      • Cure GM1 Publications
      • GLB1 Variant Catalog (Gene Mutation Database)
    • Guides
      • GM1 Clinical Trials Guide
      • Miglustat for Families
    • For Researchers
      • Grants Overhead Policy
    • Patient Voice at the FDA
      • Patient-Focused Drug Development (PFDD) Meeting
      • Voice of the Patient Report
  • Ways to Give
    • Give
      • Donate Now
    • Fundraise for Cure GM1
      • Our Fundraising Manual
      • Do It For GM1
      • Fundraising Ideas
    • Fundraising Platforms
    • Shop
      • Shop and Support Our Cause
      • RaiseRight
      • Walmart Spark Good
    • Advocate
      • Proclaim GM1 Day
      • Buy and Wear Merch
  • About Us
    • Our Mission
    • Our Team
    • Our Advisors
    • Our Impact
    • Print A Handout
    • Financial Transparency