Frieda’s Story
From Frieda’s Father Hello, My four year old daughter “Frieda” is diagnosed in GM1. We…
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Elena’s Story
From Elena’s Mother Elena was born healthy on 2/7/02. A very much cherished daughter after…
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Saubhav’s Story
From Saubhav’s Father My child’s name is Saubhav Singh. He was diagnosed at age two…
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Candela’s Story
From Candela’s Grandmother My name is Silvia Fernández. I am a grandmother of three beautiful…
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Tiffany’s Story
From Tiffany’s Mother Tiffany is my beautiful daughter, who was diagnosed when she was 10….
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Niamh’s Story
From Niamh’s Mother My 10 year old daughter Niamh started having seizures at age 2….
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Allison’s Story
From Allison’s Mother Our sweet Allison Layne was born May 22, 1985 in Tyler, TX….
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Aimee’s Story
From Aimee’s Mother My little girl was 9 months old when she was diagnosed in…
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Keeton’s Story
From Keeton’s Father Keeton Elder, Keeton had a normal birth and enjoyed playing baseball and…
