Rayan’s Story
From Rayan’s Mother My son’s name is Rayan. He was born Tuesday, January 13, 2015…
Allison’s Story
From Allison’s Mother Our sweet Allison Layne was born May 22, 1985 in Tyler, TX….
Maykel’s Story
From Maykel’s Mother Maykel Cal Oliveira was born on 12/20/2014. He was diagnosed with GM1…
Niamh’s Story
From Niamh’s Mother My 10 year old daughter Niamh started having seizures at age 2….
Cody’s Story
From Cody’s Mother Our son Cody Butcher is now 3. He was born on the…
Armand’s Story
From Armand’s Mother My son Armand Hayes was diagnosed in 2011. We are doing all…
Anisa’s Story
From Anisa’s Mother My last child has GM1. I also have two girls and a…
Lydia’s Story
From Lydia’s Mother Lydia was born, apparently healthy, a normal pregnancy. She was born with…
T-Jay’s Story
In these images, T-Jay is nearly 18 months old. He was diagnosed with GM1…
Sara’s Story
A Message from Sara’s Mother Hello Friends and Families We are an affected family from…