Lydia’s Story
From Lydia’s Mother Lydia was born, apparently healthy, a normal pregnancy. She was born with…
T-Jay’s Story
In these images, T-Jay is nearly 18 months old. He was diagnosed with GM1…
Sara’s Story
A Message from Sara’s Mother Hello Friends and Families We are an affected family from…
Maria Eduarda’s Story
Maria Eduarda was born on 07/07/2015. She was diagnosed at one year of age with…
Florence’s Story
Florence has late infantile GM1. She was diagnosed when she was 2. She has real…
Lois’ Story
From Lois’ Mom: Lois was born in 2006. She was the first girl in the…
Althea’s Story
Althea was born on 23rd September 2016, a beautiful 6lb 8oz baby girl. Thea was…
Aiden’s Story
Sweet Boy Aiden Aiden is 5 years old now. Things started off great then at…
Paxton’s Story
A beautiful baby boy born February 16, 2012 Paxton is our first and only child,…