Niamh’s Story
From Niamh’s Mother My 10 year old daughter Niamh started having seizures at age 2….
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Rayan’s Story
From Rayan’s Mother My son’s name is Rayan. He was born Tuesday, January 13, 2015…
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Reece’s Story
From Reece’s Father Reece Lee William Wells Reece was diagnosed in March 1994 by Dr…
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Saubhav’s Story
From Saubhav’s Father My child’s name is Saubhav Singh. He was diagnosed at age two…
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Taylor, Kase, and Kolt’s Story
From Taylor, Kase, and Kolt’s Mother Three of my five children were and are affected…
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Tiffany’s Story
From Tiffany’s Mother Tiffany is my beautiful daughter, who was diagnosed when she was 10….
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Anisa’s Story
From Anisa’s Mother My last child has GM1. I also have two girls and a…
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Armand’s Story
From Armand’s Mother My son Armand Hayes was diagnosed in 2011. We are doing all…
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Cody’s Story
From Cody’s Mother Our son Cody Butcher is now 3. He was born on the…
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Lydia’s Story
From Lydia’s Mother Lydia was born, apparently healthy, a normal pregnancy. She was born with…