Armand’s Story
From Armand’s Mother My son Armand Hayes was diagnosed in 2011. We are doing all…
Anisa’s Story
From Anisa’s Mother My last child has GM1. I also have two girls and a…
T-Jay’s Story
In these images, T-Jay is nearly 18 months old. He was diagnosed with GM1…
Maria Eduarda’s Story
Maria Eduarda was born on 07/07/2015. She was diagnosed at one year of age with…
Florence’s Story
Florence has late infantile GM1. She was diagnosed when she was 2. She has real…
Sara’s Story
A Message from Sara’s Mother Hello Friends and Families We are an affected family from…
Lois’ Story
From Lois’ Mom: Lois was born in 2006. She was the first girl in the…
Althea’s Story
Althea was born on 23rd September 2016, a beautiful 6lb 8oz baby girl. Thea was…
Aiden’s Story
Sweet Boy Aiden Aiden is 5 years old now. Things started off great then at…