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Home / Stories - Page 9

Stories

Kate’s Story #AWin4Kate

February 28, 2018November 27, 2023

#AWin4Kate Kate was born May 17, 2011, a healthy and happy baby. We always thought…

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Sage’s Story

February 28, 2018November 27, 2023

Sage was born on November 20th, 2014, he was a 7 pound 15 ounce 20…

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Joe’s Story

February 28, 2018November 27, 2023

A special boy that fought to the end Joe was born 4 weeks early by…

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Paola’s Story

February 28, 2018November 27, 2023

Una Bellisima Bambina Paola is a beautiful child born on June 29, 2013. She was…

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Paxton’s Story

February 28, 2018November 27, 2023

A beautiful baby boy born February 16, 2012 Paxton is our first and only child,…

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Evan’s Story

December 14, 2017December 15, 2023

Evan lives in Arizona and is the son of Brad and Marilee Diagnosis – GM1…

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Eli’s Story

May 15, 2017November 27, 2023

Eli lives in Arizona and is the son of Brad & Marilee Leishman Diagnosis –…

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Autumn’s Story

April 16, 2017November 27, 2023

In Loving Memory of Autumn – A Happy Baby through all of the trials Autumn…

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Lenka’s Story of Hope – Lenka i Dobra Spółka

September 5, 2016November 27, 2023

Thousands and thousands of miles away in Poland, a beautiful, sweet girl named Lenka suffers…

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Ian’s Story and Mission for a Cure

March 15, 2016November 27, 2023

Little Ian was just recently diagnosed this year with Type 1/infantile GM1. Ian is a…

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • Fundraise for CureGM1
      • Use Our Fundraising Manual
      • Fundraise with Charity Miles App
      • See Our Fundraising Ideas
      • Used Car Donation
      • GoFundMe
      • JustGiving
      • Facebook
    • Participate in Our Events
      • Rare Disease Day
      • GM1 Gangliosidosis Awareness Day
      • Move for GM1
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study