Stories

Florence has late infantile GM1. She was diagnosed when she was 2. She has real…

Maria Eduarda was born on 07/07/2015.  She was diagnosed at one year of age with…

A Message from Sara’s Mother Hello Friends and Families We are an affected family from…

In these images, T-Jay is nearly 18 months old.   He was diagnosed with GM1…

From Lois’ Mom: Lois was born in 2006. She was the first girl in the…

Althea was born on 23rd September 2016, a beautiful 6lb 8oz baby girl. Thea was…

Sweet Boy Aiden Aiden is 5 years old now. Things started off great then at…

A special boy that fought to the end Joe was born 4 weeks early by…

#AWin4Kate Kate was born May 17, 2011, a healthy and happy baby. We always thought…